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Home / Rare Disease - Page 2

Rare Disease

CPRIT granted $18.7 million New Company Product Development award to Salarius Pharmaceuticals
Biotechnology | Disease | Non-Profit Research | Oncology | Pharmaceutical | Rare Disease | Therapeutics

CPRIT granted $18.7 million New Company Product Development award to Salarius Pharmaceuticals

On Aug. 15, 2019, the Cancer Prevention and Research Institute of Texas (CPRIT) announced that it was awarded…

Read More CPRIT granted $18.7 million New Company Product Development award to Salarius PharmaceuticalsContinue

NIH selected OHSU Knight Cancer Institute to co-lead largest national database for pediatric cancer, rare disease research
Biotechnology | Diagnostics | Disease | NIH | Non-Profit Research | Oncology | Rare Disease

NIH selected OHSU Knight Cancer Institute to co-lead largest national database for pediatric cancer, rare disease research

On Aug. 15, 2017, the National Institutes of Health’s (NIH) Gabriella Miller Kids First Pediatric Research Program awarded…

Read More NIH selected OHSU Knight Cancer Institute to co-lead largest national database for pediatric cancer, rare disease researchContinue

Grifols opened state-of-the-art facility in Clayton to advance treatment of rare and life-threatening diseases
Disease | Neurology | Rare Disease | Therapeutics

Grifols opened state-of-the-art facility in Clayton to advance treatment of rare and life-threatening diseases

On Jun. 17, 2014, Grifols opened state-of-the-art North Fractionation Facility (NFF) in Clayton, NC, where production capacity of…

Read More Grifols opened state-of-the-art facility in Clayton to advance treatment of rare and life-threatening diseasesContinue

The U.S. Senate declared May 16, 2012 as Hereditary Angioedema Awareness Day (HAE)
Diagnostics | Disease | Rare Disease | Therapeutics | U.S. Congress

The U.S. Senate declared May 16, 2012 as Hereditary Angioedema Awareness Day (HAE)

ON May 16, 2012, the U.S. Senate unanimously passed a resolution (S. Res. 286) recognizing May 16, 2012,…

Read More The U.S. Senate declared May 16, 2012 as Hereditary Angioedema Awareness Day (HAE)Continue

Rare Disease Day (also known as an “orphan” disease) was established
Biotechnology | Rare Disease

Rare Disease Day (also known as an “orphan” disease) was established

On Feb. 28, 2008, Rare Disease Day (also known as an “orphan” disease), was established by the European…

Read More Rare Disease Day (also known as an “orphan” disease) was establishedContinue

David H Murdock donated $35 million to Duke University to fund the Measurement to Understand the Reclassification of Disease
Biotechnology | Diagnostics | Disease | Non-Profit Research | Rare Disease

David H Murdock donated $35 million to Duke University to fund the Measurement to Understand the Reclassification of Disease

On Sept. 24, 2007, David H. Murdock donated $35 million to Duke University to fund the Measurement to…

Read More David H Murdock donated $35 million to Duke University to fund the Measurement to Understand the Reclassification of DiseaseContinue

The Stephenson Cancer Center was established
Biotechnology | Diagnostics | Disease | NIH | Oncology | Rare Disease | Therapeutics

The Stephenson Cancer Center was established

In 2001, the Stephenson Cancer Center was established. Located on the University of Oklahoma (OU) Health Sciences Center…

Read More The Stephenson Cancer Center was establishedContinue

First gene therapy trial for patients with Hunter syndrome began at the University of Minnesota
Biotechnology | Rare Disease | Therapeutics

First gene therapy trial for patients with Hunter syndrome began at the University of Minnesota

On Oct. 25, 1996, the first gene therapy trial for patients with Hunter syndrome was begun at the…

Read More First gene therapy trial for patients with Hunter syndrome began at the University of MinnesotaContinue

Investigational drug regulations revised to expand access to experimental drugs for patients with no alternative therapies
Biotechnology | FDA | Pharmaceutical | Rare Disease | Therapeutics

Investigational drug regulations revised to expand access to experimental drugs for patients with no alternative therapies

In 1987, the U.S. Food and Drug Administration (FDA) announced revised regulations regarding Expanded Access (EA) to investigational…

Read More Investigational drug regulations revised to expand access to experimental drugs for patients with no alternative therapiesContinue

The Orphan Drug Act was passed by the U.S. Congress
Biotechnology | Disease | Rare Disease | Therapeutics | U.S. Congress

The Orphan Drug Act was passed by the U.S. Congress

On Jan. 3, 1983, the Orphan Drug Act was passed by the U.S. Congress with the leadership of…

Read More The Orphan Drug Act was passed by the U.S. CongressContinue

The Centers for Disease Control and Prevention reported the first cases of AIDS
Biotechnology | CDC | Diagnostics | Disease | Rare Disease

The Centers for Disease Control and Prevention reported the first cases of AIDS

On Jun. 5, 1981, Dr. Michael Gottlieb and colleagues of University of California at Los Angeles reported a…

Read More The Centers for Disease Control and Prevention reported the first cases of AIDSContinue

national immunization program for swine flu and Guillain-Barre syndrome Cause is Unknown
CDC | Influenza | Life Science History | Rare Disease | Vaccine

national immunization program for swine flu and Guillain-Barre syndrome Cause is Unknown

In 1976, the U.S. Centers for Disease Control and Prevention (CDC) was involved in a national immunization program…

Read More national immunization program for swine flu and Guillain-Barre syndrome Cause is UnknownContinue

Reye syndrome was first described
CDC | Chemistry | Life Science History | Neurology | Pharmaceutical | Rare Disease | Therapeutics

Reye syndrome was first described

In 1963, Australian pathologist R.D.K. Reye first described this syndrome. National surveillance led to strict warnings regarding aspirin…

Read More Reye syndrome was first describedContinue

The Laboratory of Viral Oncology was established
Biology | Diagnostics | Life Science History | NIH | Oncology | Rare Disease | Therapeutics

The Laboratory of Viral Oncology was established

On Jan. 12, 1961, the National Cancer Institute (NCI) established the Laboratory of Viral Oncology, a new intramural…

Read More The Laboratory of Viral Oncology was establishedContinue

Johnsonᅠ &ᅠ Johnson acquired McNeil Laboratories
Chemistry | Life Science History | Neurology | Rare Disease | Women's Health

Johnsonᅠ &ᅠ Johnson acquired McNeil Laboratories

In 1959, Johnson ᅠ&ᅠ Johnson acquired McNeil Laboratories giving the Company a significant presence in the growing field…

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The U.S. government established a national blood collection program
Biology | Diagnostics | Disease | Life Science History | NIH | Oncology | Rare Disease | Therapeutics

The U.S. government established a national blood collection program

In 1940, the U.S. government established a national blood collection program. That same year the National Research Council…

Read More The U.S. government established a national blood collection programContinue

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