On Feb. 25, 2019, the Tyrosinemia Society (TS, Inc.) was founded by Dr. Elizabeth Barnby, a researcher and mother of children with the condition, to increase awareness, improve patient outcomes, and support research funding to cure Tyrosinemia.

Tyrosinemia is a rare genetic disorder that does not yet have a robust campaign platform from which to raise funds on an international level, and that is the gap the TS, Inc. would like to fulfill.

The purpose of the TS, Inc. is to increase awareness, improve patient outcomes, and support research funding to cure Tyrosinemia. Through education and public service, TS, Inc. will better educate the general community and caregivers of clients with Tyrosinemia, and create training resources that will improve client outcomes living with Tyrosinemia.